Happy Birthday Robi

32 years ago today Robi came to this earth. Its been almost 2 months since he left. His time here was so short. I still ask myself the question, "Did we really have a funeral for Robi?" Was that real? I keep thinking he's still going to come over to our house and set up our apple TV :)
What would we do for him to celebrate his day today if he were with us? We would have the biggest birthday party possible! He would choose Texas de Brazil for his dinner and he'd spend the whole day glued to Amber and their girls. He loved them so much.
Amber is having a hard time right now. We've heard that immediately after a death is easier than the pain that comes a few weeks later, that seems to be true in her case. She is coming out of the haze she has been protected by over the last few months and its been very difficult. Today will be a challenge. Let's celebrate his birthday today by doing what he really wants- making his family happy. Send them a note, some flowers, a prayer, drop balloons on the doorstep- whatever you're most comfortable with. But he would like to see his family, especially Amber, happy again. That would be BEST present we could give him.

HAPPY BIRTHDAY ROBI! We miss you.

I like to hear how Robi's life has changed people. It makes it feel like there is a real purpose to this very difficult experience. His life changed me in many ways, especially now that I am drinking spinach, asparagas, etc etc drinks that I never wouldn've considered before. :) We grew up together and he's influenced my life for many years. My kids are 8, 6, 4, and 2 and in their short lives they have been shaped by his enthusiasm and wit as well. I was listening to my older 2 talk last weekend about one of our trips to Disneyland. They laughed about riding "Indiana Jones" with Robi and how it pretended to know how to read the crazy writings throughout the ride. He made up stories that included the little girls and claimed that's what written on the walls of the ride. They giggled and laughed. They loved him. I also enjoyed reading what Page Law wrote about Robi a few posts ago. To read it again, click here. She talks about how her life has changed and what she learned from his funeral service.

1 month anniversary

Last night marks the 1 month anniversary since I last saw Robi living on this earth. He was comfortably sleeping, though in a coma, he seemed strong and getting much needed rest. His monitored stats were really good and the doctors had even lowered his medication level allowing his lungs to do a little more work on their own. I was with Amber in the hospital as we talked about life and how we wanted to become better people, mothers, wives. She spoke and I listened, amazed and uplifted, as always.

We then talked about Robi's next steps in treatment. I was going to call a few doctors the next morning regarding alternative treatments and what was possible during his current hospital stay. We thought we could possibly get him some alternative cancer treatment while in his coma??? I would have called the next morning, had I been given that much more time. I left at midnight and as I left, Rob's sister had just gotten to town from Arizona and wanted to come see him. She met Amber and I at the door.

Rob was doing good when I left but I did notice there were a lot of hospital staff coming in his room that night, more than usual. His stats were good but they were concerned about his kidneys because he hadn't urinated much. While I was there, he was a given a shot to help induce urination... (which usually helps! A few days prior when I was he there he got the shot and he had to go right away, and then again, and again. :) But his shot that night didn't seem to do anything. It's hard to write the things I felt that night but I want to try because I'm hoping this blog will be printed one day, and Amber, and her girls, will find comfort in remembering these events. And what it felt like, from my perspective - the outside looking in. Amber called me about 1:30 am. I had just gotten home from the hospital and was getting in to bed. When I saw her name on the caller ID, my stomach sank. I knew she wouldn't call me at this time of night for any other reason. Jeff and I jumped out of bed and drove to the hospital. It took about 35 minutes to get there. I didn't ask questions when she called so I didn't know exactly what was happening. She told me to come, so we did. When we got there and I saw them sitting outside of his room crying, I still didn't know. To see Amber in such pain made me break down. I remember hugging her, still hoping there was a chance. Peggy was sitting next to us and she was making a phone call. She told the person on the other end that Robi had passed. The words knocked my breath away. NO!! It couldn't have happened. I just couldn't believe it. He was fine an hour ago!

We walked into his room, all of us weak in the knees. Alan literally almost fell over. I fell in the hall a few times and Jeff held me up. I really don't know how to describe how it felt to see him laying there. It was a peaceful sight to know his battle was over, there was no more suffering for him, but a heartbreaking experience to know we were left here on earth without him. We scooted him over and Amber lay next to him, holding him, talking to him, kissing him. I still can barely comprehend the emotion in that room. I'd rather not re-live it but on the other hand, maybe its something his girls will want to know. To know how their mother loved their father. To sit and watch her with him. She needed him. She wanted him. She would've, without any hesitation, given her life to bring him back. She was so scared and kept asking him how she was going to tell their girls that he wasn't coming home. She was so worried about their girls. As Jeff and I watched, and Julia Peterson, she made us promise to never fight with each other. We had to promise to love and appreciate each other. I felt so guilty to have Jeff with me.

I'm so glad it has been a month already. Amber has experienced the worst day that life can possibly give her, and she survived it. She will never go through that again. From that day forward, her heart can heal. It is a very slow process, but it is healing. Not forgetting him, not getting over him, (that will never happen), but adjusting to life without his physical presence. She has told me how she is envious of elderly people because they'll get to see Robi again soon.

On the 1 month anniversary of her father's passing, Joslyn started the first day of 3rd grade. Its a time of new beginnings. Lets appreciate the blessings we have right now. Planning for the future is good, but lets live in the NOW. Love those around you for who they are right now, not who you want them to become. Appreciate the home, the car, the job, that you have now - not the one you dream of having in the future. Spend a few extra minutes appreciating the family members in your life. Tell them you love them. Make this a new beginning in all of our lives to love more and laugh often.

Don't forget that there is a Soccer Game tomorrow at 6:00pm at Eldorado High School for Robi Grimshaw. Open to everyone! If you'd like to play, please bring your friends and neighbors and come out for a fun evening!

At the fair on Saturday the same boy won both raffles with the braces in them. He has decided to donate one back to Rob's family to raise more money. Isn't that so nice?! So if you would like a set of "phase 1" braces please email me or leave me a comment on here. Google phase 1 braces to find out specifics on what it is. I know it's early treatment for ages 7-10 years old. It's a value of up to $3500. Please let people know. This is open for anyone to make an offer on. Thanks!
My email is stone.lindsay1@gmail.com

A Fun Weekend

It was a lot of fun this weekend at the fair. Thank you to all of you who made the drive and came to support Robi's family. I think everyone that came had a great time, I know I did. There were so many of you who volunteered and we couldn't have done it without you. Thank you for all of your help! Between every activity and booth we required over 100 volunteers in order to accomplish what we did. If anyone has pictures to share, please email them to me at stone.lindsay1@gmail.com.

Tears filled my eyes many times throughout the day as I looked over to the main road and saw all the cars lined up and down. The balloon release was simply beautiful and I was so proud to be a part of this. I have many memories of Robi at the ranch but today will forever be my favorite. He would've loved to see his family there and all the people who came to support them, but he also would've loved to see all of the families who came out together - parents and children spending time together. Family time was very important to him and I know this fundraiser was more than just that. It was a tribute to Robi and his great example of love, friendship, adventure, and family unity.

If somehow it is possible to break the barrier and see what is going on here on earth while he is heaven, I imagine its hard for him to see Amber alone. He knows how she feels and he's probably sad that he can't help her or take away her pain. He loved her more than anything so, although this transition is easier on him than it is on Amber, it is still difficult for him to see her suffer. We are his hands here on earth. Let's keep watching out for Amber, Joslyn and Savannah and making sure they are not alone. Stop by to visit, help out whenever you can (Amber LOVES chocolate!), keep them in your prayers.

I know I'm a nerd for saying this but it makes me happy to think maybe he did get to grab a few of those balloons from the sky. Maybe he did get to touch the one's from his girls and Amber seconds after it left their hands. Whether its a silly thought or not, it makes me smile and I like to think he did. Just as we said as we released the balloons, "We Love You Robi!"

Native American Flute

This Native American flute has been crafted and hand made in spalted maple with a boxelder mouthpiece in the key of G. It is a work of art by an amazing artist and award winning flute maker, Tim Bluefint. He donated it to the Grimshaw family. It plays as beautiful as it looks. We will be raffling it off this weekend at the Country Fair. Please check it out as it will be on display. It is One Of A Kind. Raffle tickets are $10 each. If you are interested, it will be on display at the fair this weekend. Lynn WIlliams is running this raffle so please contact her with any questions. She will be at the fair.
Thank You.

Be Sure To Buy Tickets in Advance -- for a discount!

We have been learning lately that despite our best efforts, word about our Country Fair Carnival is not spreading as quickly as we had hoped. The fair will be this Saturday, August 20th. We are down to crunch time! If you are in the Vegas or Southern Nevada area please help us spread the word! Attach a link to the blog www.becausewecarecountryfair.blogspot.com to your facebook, blog, or any other means of getting the word out. If you are planning on attending, it would be very helpful to have you purchase tickets ahead of time to help us with attendance numbers. We are also still in need of a few more volunteers. The fair is going to be very entertaining and worth the short drive, we will be having a balloon launch in the evening to honor Rob. We are still dedicated to helping this sweet family for as long as possible. Thank you for your continued support!!

Robi was so awesome with kids. He always had a way to keep them busy and entertain them. I was just making lunch and over heard my girls' conversation with the friends they have here. Brooklyn was telling the others that Robi told her "if you lick your elbow, it tastes like a lollipop". HAHAHA. I was laughing so hard. I hope he can see the room full of little girls downstairs attempting to lick their elbows!

Soccer Game

On August 27th at 6 pm on Eldorado's soccer field there will be a co-ed Alumni soccer game in Robi Grimshaw's honor. We will be raising money for his family. Everyone is welcome to attend. If you would like to play, please contact David or Rami Ostler (via facebook). Donations will be taken at the gate and there will be a light concession stand.

Lessons I Learned From Rob

Yesterday was a very emotional day for me. After Rob’s service, I spent most of the day reflecting on what I had heard and seen, I want to share with you- lessons I learned from Rob.

- Don’t be afraid of life- the stories that were shared had such a common theme, Rob lived, he truly lived. He had adventures, he laughed, he put himself out there and did things that scared him.

- Make the most of things that matter, make the little things count- As I shared earlier in a blog comment, Robi and Amber were the only ones who would take Joslyn and my kids on the Grizzly River Rapids, in November-at night- in the freezing cold. Not only did he do it but he did it 4 times. He gave them memories. Many stories were told about entertaining sleepovers, jokes he told, and little things he did for others to make their day. These weren’t huge heroic acts, but simple things to bring happiness to others, he showed us that the little things count. Last night I made a cake after bed time, we got the kids out of bed (they weren’t sleeping anyway) and we ate cake, we did it for Robi. We didn’t worry about too much junk, or getting to bed on time, we stayed up late and had cake, something small and silly, but something that made us all smile. I hope we can all read that extra story at bed time tonight.

- Laugh a lot- His service was full of as much laughter as tears. So much was shared about his sense of humor and quick wit. Robi spent so much time making others happy and making them laugh. (I still want to know what the booger joke was). But my favorite was the letter to the inmate busted for stealing his band equipment (especially funnier because Rob himself caught and outwitted the poor fellow)

- Don’t put off the things you should do- I guess this one was more for me because of Robi. When he was in the hospital here in Vegas we wanted to go and see him but things just kept coming up (I can’t even remember what so they obviously weren’t important). We kept putting it off then finally got a sitter and headed out. When we were half way there Amber text us and said the Dr. said he had to rest, since we couldn’t see him we headed home. The next day they put him in a medically induced coma, he never woke up. I can’t tell you the sadness I feel that we let that moment slip away from us. I learned that when it comes to the things you should do- DO THEM, don’t let excuses and insignificant details get in the way.

- Build your testimony, serve- There were so many stories about Rob’s testimony. Once he joined the church he gave his whole heart to it, he jumped in with both feet and used the gospel to bless his family and those around him. I would have loved to be in the sacrament meeting where Rob took the whole time sharing his testimony! He magnified his calling and set an example for the boys he served and the adults he served with. I would have loved to see his Arrow of Light ceremonies, I know those boys will always remember them.

- Don’t complain- It was so inspirational to hear stories of Rob coaching his daughters soccer team while undergoing treatments but never complaining about the pain and sickness, his friends shared stories of trips he took, sometimes in miserable conditions but never uttered a word of complaint. (I’m going to throw Amber in here as well because it was so inspiring to hear some of their experiences with less than compassionate doctors. They never left angry or upset, but with compassion themselves. They were going through so much but felt sorry for the doctors and wished them well).

-Focus on the things that matter, love- He loved his family fiercely! He made sure they knew it. In the end he felt a desire to be home and with his girls, he also felt a desire to make sure Amber knew how much she meant to him, how much he loved her, but he didn’t wait till them to tell her and show her. He loved Amber, he loved his girls! He showed them every day in word and in deed. He loved his extended family, he loved his friends. He was always concerned about other people and their well being.

- Endure to the end- Though in incredible amounts of pain, he never gave up. He fought courageously to the end.

-Families are Forever- The Bishop shared amazing thoughts and insight at the end of the service. I’m sure we’ve all thought, at least he isn’t in pain any more, but there is so much more to that. Rob is now in a place of peace, where he doesn’t have to rely on faith anymore. His knowledge is so much more than our own. He has the answers to many questions we may have. He knows why his mission in life was fulfilled after only 31 short years, he knows what is in store for his family, and he KNOWS he will be with them again. There is such a peace in knowing families are forever. There is such heartache and loneliness in dealing with the loss of someone like Robi, but it is made bearable by the knowledge that our loving Heavenly Father has made that separation only temporary. While it will seem like a long time to his family, they have Rob up there preparing to be with them again, what a reunion it will be when they are united and able to live together for eternity, it will make this mortal life seem so brief in comparison. I am eternally grateful for the Plan of Salvation and the happiness and peace that it brings.

I know this was vey lengthy but my heart is so full. One of the reasons I felt I wanted to write all this down is because I didn’t know Rob as well as I would have liked to. We only became acquainted with the Grimshaw family a few years ago. I don’t have any high school stories, or growing up with Rob stories. I do have a few family Disneyland trips, trips out to the ranch, and couple dinners. We have a few special occasions we were lucky enough to be a part of, their family sealing, and Joslyn’s baptism. I wish we had more. My point is, even though we are recent and not long time friends, Rob had such an impact on our lives. I felt like I knew him even better after the service. I am so thankful for all the memories that were shared because I learned so much from them. You may not have known Rob personally, you might have only known him for a little while, or you may have known Rob your whole life, whatever the case may be we can all learn so much by the way he lived his life. Learning more about Robi has changed the way I think about some things and I hope to pay tribute to him by being a better person. All and all I have decided, I want to be like Rob!



Page Law



If you have stories, or want to share lessons you learned from Rob please leave a comment for all of us to read.

Robi's Obituary

This obituary will print in the Southern Utah Spectrum Newspaper Thursday, August 4th and Friday, August 5, 2011. It will also print in the Las Vegas Review Journal on Friday, August 5, 2011.




Robert Alan Grimshaw, 31, of North Las Vegas, NV, passed into the loving arms his Heavenly Father on Friday, July 29, 2011, after a courageous battle with a rare form of cancer.

Rob was born in Beaver, Utah, on September 20, 1979, to Alan Smith Grimshaw and Dawna Denise (Deedy) Sheppard Grimshaw.  He was the youngest of four children.  Rob married his high school sweetheart, Amber Lee Turner, and was sealed to her for time and all eternity in the Las Vegas, Nevada, LDS temple on February 26, 2011.  Rob and Amber are the parents of two beautiful daughters. 

Rob was a graduate of Eldorado High School in Las Vegas, where he was a standout soccer player.  His abilities led him to play locally at CSN and on indoor teams.  Away from the pitch, Rob was an accomplished guitarist/music composer, youth soccer coach, and Webelos leader.  Other interests included hiking and fishing.  He will be remembered by all who knew him for his witty banter, love of children, love for family, ability to think outside the box, and keen insight into one’s soul.

Rob is survived by: his wife, Amber; daughters Joslyn Talor (8) and Savannah Riley (2); father, Alan, sisters Tamara Byington (Eric) and Teresa Baer (Mark); three nephews and two nieces.

Rob was preceded in death by: his mother, Deedy Grimshaw; brother, Alan Oliver Grimshaw; and nephew, Riley Byington. 

Services will be held at the San Destin Ward Chapel of the LDS church, located at 5975 Clayton St (at Tropical), N. Las Vegas, NV.  Visitation will be held Saturday, August 6, from 9:00-10:30 am, with the funeral services beginning at 11:00 am. 

**Flowers can be sent to the church where his service is being held - 5975 Clayton St., North Las Vegas, NV 89031

Funeral Services for Robi will be held on Saturday, August 6, 2011 at the San Destin Ward (Church of Jesus Christ of Latter Day Saints) chapel. Building located at 5975 Clayton (at Tropical) North Las Vegas, NV.
9:00-10:30 Viewing
11:00 Funeral Service
We can't thank you enough for your love and support, but I'll say it anyway,
Thank You.

Because We Care Country Fair

We are still going to go on with the fundraisers that we have planned for Robi and his family. It will give us a chance to celebrate his life and share memories together. The ranch was one of Robi's favorite places so we are excited to have the fair in his honor. We originally started fundraising to earn money to pay for his alternative treatment but now our focus has changed a little. We will now fundraise to pay for the medical bills that will continue to come in for the next few months, and to pay for funeral costs. Anything extra will go in to a trust for his 2 little girls. I know Robi will be watching from above and eternally grateful for the support shown to his young family.



(click on the flyer to enlarge)



Please visit our blog, made specifically for this fair, to find out more information regarding the fair. Its going to be so much fun!! Simply click the on the link below the flyer.
www.becausewecarecountryfair.blogspot.com

On Friday, July 29 Rob Grimshaw left this earth.

I can tell you he left this life a better place because he was in it
and I know he will take great pride in preparing the next
for his beautiful wife and daughters.
We take comfort in knowing families are forever and they will be reunited once again.

Thank you so much for all of your love and support during the past few months. Rob felt it and was overwhelmed. He left knowing that his wife and daughters had a wonderful system support behind them.

The night of his passing was very unexpected by all of us. He was on life support but was doing very well on it. His numbers were good and he was strong. When the time came for him to go, it happened very quickly. His stats were reading normal at 1:30 am. He passed away at 2:30. It was a blessing that it was quick and he didn't seem to struggle through it.

Its very hard to write about the feelings and emotions of such a personal subject, especially when the experience isn't mine. Its my best friend's. I have tried to write in a way that tells his story positively and sensitively but I struggle to know what he would like me to write, especially now. I think if Rob were able to sign on here and leave us all a message he might quote a few lines from his favorite songs, he'd tell us a few jokes (that would probably take Amber about 10 minutes to catch on to) he'd express his love for Amber and his girls, and he would tell us to be happy. He is pain free. He is happy. He is with his mother and brother. He will be with us again.

He tried to convey his love for Amber the night before he was put in to his coma. He didn't know what was coming but he felt a sense of urgency and anxiety to make sure she knew how he felt. He couldn't come up with enough words to explain the deep feelings he felt for her. Amber wasn't ready for that conversation yet, but she told him she loved him too and that she knew he loved her.

They really are an amazing couple that are a wonderful example to all of us. He trusted her every decision and she did everything a person can do, and more. They showed their love for each other and didn't take each other for granted. There was never a conversation that I had with them during this whole experience where they didn't teach me a lesson, give me more faith, or inspire me to do better.

One person that I haven't mentioned a whole lot in this blog is Robi's Dad, Alan. He lives with Robi and Amber and he is AMAZING. He has taken care of the 2 little girls while Rob and Amber traveled. He helps with everything around the house and he is a strength to all of them. He has been there every step of this journey and I am so grateful he is there for Robi's family.

I love them so much and I thank you for all your help during this physically and emotionally painful past few months. Amber, Alan, Joslyn, and Savannah will be blessed and buoyed up by their faith in Jesus Christ.

Amber would really love to hear stories about Robi. If you are uncomfortable leaving a comment here, please email me at stone.lindsay1@gmail.com and share your stories and memories of him.
Thank you so much.

Slide Show

I will be putting together a slide show presentation for Robi that will be shown at his funeral. We are thinking the service will be Saturday at 11am but that time could change. Stay posted in case it does. If you have any pictures that Amber might not already have, please send them to me at bandvnelson@aol.com. Please try and have those in by Wednesday at the latest. Thank You!

There is no easy way to say it but Robi passed away last night at 2:30 am. Please continue to keep the Grimshaw family in your prayers. Please leave a comment sharing a funny story or good memory of Rob. We will print them to help his young family remember what a great man he is.

today

was a hard a day. Early this morning Rob really began struggling to get oxygen. His levels were dropping. For a few hours he struggled to breathe. He was intense in his effort to get air to the point of sweat and exhaustion. When all other options were gone, he voluntarily allowed the hospital staff to put him into a coma so tubes could be put in and fill his lungs with air. Try holding your breathe for a few hours... I understand why he chose this.

It is painful to see him so lifeless but there are alot of good points to this solution. Robi hasn't slept in months, literally! He has been in so much pain that we don't think he has been in a deep sleep since April. (no exaggeration) This way, he is forced to sleep. His body isn't feeling the pain and he can actually rest while he fights the pneumonia. Once he recovers from this, he will go straight to Phoenix! But until then, he must stay and recover before anything else can be done. He is in stable condition now. He is getting the oxygen saturation that he needs and his heart rate is good as well.

He isn't aware of anyone in the room with him. Visitors are very limited. But there is a special bond between Rob and Amber. One that even the coma doesn't break. When Amber is in the room, he knows it. He feels her and responds to her. While she was in the room today, he tried to get up. The nurses asked Amber to leave while they got him settled down again. In order for her to be in the room, she has to quietly sneak in, as if he's awake. That way he doesn't know she's there and she won't disturb his rest. We decided that she won't hold his hand for the rest of today in order for him to get the most rest he can. Before he went to sleep, he promised her he would keep fighting! but he knew he couldn't go on living in his condition.
When he wakes in a few days, he will be strong again. His body will have rested and he will be on his way to treatment in Phoenix.

Please keep him in your positive thoughts and prayers. The power of prayer can make miracles happen.

Tonight Rob and Amber are spending another night at Centennial Hills Hospital. He is getting better but its a bit of a slow process because his body is working hard to fight so much at once. The infection in his arm still hasn't cleared up so he is battling that, along with his pneumonia... and tolerating the pain that accompanies it all. For everything he is going through, he is healing well and we hope to start treatment in Arizona a week from today.
We received great news from the Burzynski Clinic in Houston today. They called to let us know that some of Rob's bloodwork results are back and his blood matches their protocol!! VERY exciting!!! They have a treatment that will help Rob and they are going to send the information to Phoenix. When Rob gets to Phoenix next week, he will start treatment from both clinics. We are so thrilled and can't wait to start!
I really enjoyed being at the hospital today. I don't know if it was watching him grasp Amber's hand as the pain became too intense to handle alone or seeing him reach for her when he couldn't catch his breath. Maybe it was watching his dad kiss him on the head as he slept or rubbing his soft new hair that has grown in. Whatever it was, I thought I would visit the hospital to brighten his spirits and I left as the one who was uplifted and taught. He is a fighter. He is strong. And despite the weak condition that he is in, he continues to be so witty and make everyone laugh.

A few things -
We are still fundraising as much as possible to help cover his treatment costs. All of this is alternative, which means insurance covers nothing. Everyone has been so supportive thus far and I know we can continue working together to reach our goals. The cost of treatment will begin at about $4000 per week so we need to keep up our hard work.

If any of you are looking for jewelry, maybe to save for a gift for an upcoming birthday or Christmas gift, please click on our Lia Sophia Jewelry Fundraiser on the right sidebar. All of the proceeds go to Robi.

There is a fundraiser on August 13 at the Cheyenne Saloon located at 3103 N Rancho Dr. LV, NV 89130.

The "Because We Care Country Fair" event will happen on August 20 at the Williams Ranch. The entire ranch is reserved for this fundraiser. There will be swimming, fishing, kayaking, pony rides, horse shoe tourney, face painting and more. Details will be posted this week but mark your calenders.

AND, in September we are having a Yard Sale so please think of anything you may want to donate! If you are ready to get rid of stuff now and don't want to wait until September you can drop it off to one of us so please comment, call or email!

Robi is still in the hospital recovering. The kids made this fun card for him yesterday. It is complete with cookie sprinkles, a popsicle stick heart, handprints, and lots of love. Get Well Soon!

They've decided on a treatment! They are going to go to the Alternative Care doctors in Phoenix and combine that treatment with the Burzynski clinic after a few weeks. It feels great to finally have the decision made. The doctors feel like they can get a handle on things and help him feel better soon. They will get started in treatment as soon as they can get to Arizona.
Today Rob went to see a doctor in town because he is having some side effects from his new pain medications. The doctor did an x-ray and thought he had pneumonia. This evening Robi was admitted to Centennial Hills hospital in Vegas and diagnosed with pneumothorax. He is in good hands and they'll get him up and going soon. The Cyber Waiting Room will continue pulling for him until he gets on his way!

Today was a long day at the Burzynski clinic. The appointment was first thing in the morning and ended as they left the clinic around 5:00.
Before I go any further I need to explain that while at MD Anderson last week, doctors found that Rob's arm had an infection. They removed a tissue sample that should have results available tomorrow. Assuming the infection was there and treatable, doctors put Rob on a regimen of medicine to get rid of it. They also wanted to start Chemotherapy immediately and, in fact, came to his room ready to begin last Friday, but were turned away.

At Burzynski today, Amber walked into the office pushing Rob in his wheelchair and pulling his oxygen tank, anxious and excited to hear something new. Doctors discussed their options based on Rob's history and paperwork. Chemotherapy along with some alternative formulas is what they would like to try on Robi. They have some great treatments for cancer but not sure what Robi will respond to. They decided to collect blood and test it in order to find out what formula they should use. It will take about 3-4 weeks to those results. It was after about 2-3 hours that one of the doctors looked at Robi's arm. He too diagnosed his arm with having an infection. They advised Rob to go back to MD Anderson Emergency Room and get his arm infection treated, then return to Burzynski for treatment and chemo. At MD Anderson the staff said that treating the infection and having chemotherapy was fine to do at the same time. Burzynski insisted that the two treatments (infection and chemo) canNOT be done at the same time. This illustrates an excellent point - Everywhere they go to find answers, the doctors contradict each other. They want to believe all of them but what do they do when the doctors flat out oppose each other? All of the doctors are doing their best and Robi's case is extremely rare. There is no blame or frustration toward the doctors themselves, just frustrating that there isn't any clear answers. One doctor says that Ipt (form of treatment that is only 10% chemo and doesn't affect healthy cells) works great for aggressive cancer while the other says it doesn't work at all. So, to take a very long day and condense it into a very small post, today wasn't what we had hoped for but maybe in the future it will be a resource that will be able to use. Right now 3-4 weeks for results is way too long to wait.

That leaves us with 2 choices, MD Anderson and the alternative care in Phoenix. Both are great options. Amber has done everything she can to learn and interview with doctors around the United States and Mexico. She is having a really hard time deciding where to go. More chemo to his already very weak and suffering body that didn't help the first 3 times? Try alternative care that will help him feel better but may not be aggressive enough to help?

One thing we have decided is that Robi needs his daughters. He is very homesick for them and his depression isn't helping matters. His little girls bring excitement and joy into his life. He not only misses them but he truly NEEDS them around. He is a fairytale father whose life revolves around his family. I will always have a picture in my mind of once when I saw Rob teaching Joslyn how to fish. He was leaning over her shoulder and teaching her all the tricks. She was interested but not quite as much as he was. After a few minutes of patiently waiting for a bite, Joslyn seemed a little bored so Robi was prepared. He brought a net along with him and within a few minutes they were chasing fish around and catching them in the net. That was much more exciting for Joslyn! Keep in mind, she has since taken after her father and become a little fishergirl. Being apart this long is too hard. From now on, 4 days is the magic number. Any longer than that- they will travel with him or he will receive treatment at home.

Tonight, please Pray for Amber to have clarity of mind. That she will be able to make the decision that is right for them at this time. Pray that both of them will feel peace in their decision and pray that the doctors will be inspired as they treat him...

Rob was released from MD Anderson Hospital in Houston today. Tomorrow at 9 am he has an appointment with Dr. Burzynski who is also in Houston. This is the last doctor to consult with. We are really excited about him and hope the appointment goes well. There is another young girl in Las Vegas, Kassidy (click her name to read her story), who is also fighting cancer. She receives treatment at the Burzynski clinic and she is doing very well.

This weekend there is another great fundraiser. Sara, a Lia Sophia Jewelry Consultant, is hosting a party where all proceeds will be given to Rob and Amber.

Saturday, July 23 - Open House
Where: 4717 Erica Drive, North Las Vegas, NV 89032
Time: 10:00-4:00
If you are unable to attend and you would still like to purchase, you can order online at www.liasopohia.com/saraowens. Place Robi Grimshaw as the host. Orders may be placed until the 27th of July.

For each order placed, your name will be entered into a Lia Sophia Raffle for free and discounted jewelry as well as other prizes. If any show is booked from this event, 25% of those proceeds will also be donated to the Grimshaws.

Zumba

Today's Zumba fundraiser was a blast!
Thanks to all of those who came out to shake their booty
and support Rob and Amber.
It's so awesome to be in a room full
of people all there for the same reason.
Thank You!

We love you Rob!

Also thank you for all the sneaker donations so far!
I could hardly shut the back of my van!
The "door ajar" light was flashing
and I had this fear that I would be driving on
the freeway and they would all come bursting out.
Remember you can always take shoes
to any event that's held.
So continue to ask neighbors and coworkers
for any shoes they might have.

Thank you for all of your love and prayers. While sitting in the hospital, it has been encouraging for Rob and Amber to read your comments and see that you are all waiting for his quick recovery.

At first, it was really scary for them to be so quickly admitted into the Emergency Room but after things settled down, we realized that it was actually a blessing. Getting admitted to the MD Anderson hospital is sometimes a lengthy process. Going to E.R. speeds it up and he can get treated more quickly. The first night they sat in a cubicle for about 11 hours waiting for an answer or some direction. Amber was really scared that night and Robi was in severe pain. Amber kept asking them to let her take him home because she knew she could manage his pain better and care for his needs. At about 2 am they were taken to their room and "officially" admitted. The night got better because they were given a great nurse. Amber was finally able to sleep since she knew that nurse understood his pain and she would take good care of him. However, in the morning at shift change the new nurse didn't really understand. Amber just kept praying that she could make her see how Rob was feeling. She never quite understood that pain.

When the doctors came in Rob and Amber were disappointed to hear that chemotherapy was the doctors prescribed treatment. Rob has already done 3 rounds of chemo and it was really hard on his body. Since the scans showed that it didn't help his tumors, Rob was planning to try something different. After waiting so long to get in with this hospital they are really confused about what to do. They know its one of the best hospitals in the world but why are they prescribing the same things they've already been through... that don't work? They have lots of questions... What should they do? Should they go through chemo? Should they try another clinic even though this one has such a great reputation? There is a clinic in Houston, called the Burzynski Clinic. It has been recommended to Amber by a few different doctors and Suzanne Sommers talks a lot about it in her book, "Knock Out". One family who lost a child to cancer also told Amber about it. They thought it was a great alternative but didn't discover it until it was too late. The doctors at Burzynski pretty much do the opposite of chemo. They build up the immune system and healthy cells in order to fight cancer, as opposed to chemo that destroys all cells.

He had an appointment with the Burzynski clinic today but he was still in the hospital and unable to make it. The new appointment is now set for Tuesday. In any case, MD Anderson will release him from the hospital tomorrow. They recommend that he come home to Vegas and start chemo right away, then go back to Houston in about 6 weeks for full on treatment. His oxygen is still low and the tumors have grown since his last scan but all tests on his heart came back healthy and strong. One great thing is that they have options. They are working with some of the best doctors in the world. The only thing left to do is decide. Its a hard decision. No one knows- especially because hardly anyone has seen this before. Amber has a lot of weight on her shoulders knowing that it's her husbands life at stake. She is overwhelmed with the decisions and choices that have to be made. We know the waiting game is dangerous. But she doesn't want to make a decision without looking at all options. Does anyone else feel confused and helpless?

Rob's Cyber Waiting Room

Do you remember the picture we posted a few weeks ago of Robi's arm? This is a picture of his arm last week.

Recently, I had a friend share an interesting statistic she learned from a show she had listened to. The guest on the show shared that the number of people sitting in the waiting room for an injured or sick patient receiving care in an Emergency Room had a direct correlation with how the patient fared and recovered. Those with few or no friends or family in the waiting room didn't do as well or recover as quickly as those with many friends and family in the waiting room. The support in the waiting room is like a lifeline and motivation for the patient to pull through and recover. It is the support and strength when a little extra is needed!

Yesterday Robi was admitted to Emergency Room the hospital at MD Anderson in Houston, Texas. The doctor is concerned because of his low oxygen levels due to the tumors in his lungs. Doctors will present the treatment process today.

We figure that our blog is like the door between Rob's "Emergency Room" (the hospital/home) and the "Waiting Room" that is cyber space. We would like for everyone reading the blog to leave a comment so they would know who was in their "cyber waiting room". Please let him know you are here and cheering him on. We can and will make a difference in his healing process.

We know there are hundreds of you in Rob's "Waiting Room." Let him know you are here. He's got a lot ahead of him the next few months. I know he'll fare better and recover more quickly with any love and encouragement you wish to share! Thank you so much to everyone for all the love and generosity, in every form: financial, comments and prayers. Experiences like these really showcase the depths of human love and compassion.

Please take a moment to leave a comment. Feel free to comment anonymously or just using your first name--whatever you're comfortable with. This blog is open and waiting for comments from everyone. Please spread the word so anyone who would like to, can sign in at his waiting room.
Thank you.

Interview with Rob!

Rosie Mercado is a model/actress who resides in Nevada, she took the opportunity to interview Robi to share his story and spread the word in hopes of helping him to raise more money for his treatments!!!

Grab the tissue box while you watch! So sweet to hear them talk about their journey.

What a gift... THANK YOU Rosie!

ZUMBA!!!

Come ZUMBA this FRIDAY

July 15, 2011

at Legacy High School

150 W. Deer Springs Way
N. Las Vegas, NV 89084

9:30 a.m.

Kara Brinkerhoff instructing!!!

Babysitting available for $3.00 per child

(All proceeds to go to Robi too!)

T-Shirts available for purchase $20.00 each

They are so cute, see this post for more info.

If you already own a t-shirt wear it on Friday to show your support!

Thank you!!! See you there!!!

For all those who plan on bringing their "dancing shoes" to Zumba on Friday, remember to bring your old athletic shoes too. We will be collecting all sneaker type shoes for Project Sole who in turn will donate for Rob's treatments. Helps those in need of shoes and Rob at the same time. Win win!
See you Friday to shake your groove thang!

Stars, Stripes, and Survivors

Cropping for Cancer is a non-profit organization that does scrapbooking and quilting to help raise money for cancer. This Saturday, July 16 from 9:00 am until 8:00 pm there will be a "crop" event to help raise money for Rob. They've named it Stars, Stripes and Survivors. The event will be held in the American Family Insurance Lake Mead Training Room located in the Marnell Corporate Center @ 6750 Via Austin Pkwy Las Vegas, NV 89118. It's behind the Panevino restaurant that is located off Sunset Rd.
The event fee is $50/person.
There will be a continental breakfast, lunch, snacks, and beverages.
Please visit their website for more information at http://www.croppingforcancer.org
They want to start a scrapbook for Robi so please bring any pictures of him or his family, that you may have.
This will be a great event so I hope you can make it!

Ride for Robi A Success! Thank you!!!

Thank you to all of you who were able to attend the Ride or Run for Robi Event. We had a good crowd and a fun morning! We raised $5,000! Everyone that came was so generous. Robi is really blessed to have such a strong support behind him. Today was another successful fundraiser thanks to all of you. Have a good weekend! (...hope you aren't too sore tomorrow) :)

And if you missed out on the shirts, you can still purchase them. Either comment here (don't be shy!) and I'll ask Stacey to get in touch with you or come to zumba this Friday morning at 9:30 at Legacy High School. They're super cute! ...I think it would be cool if we all wore these "Remedy For Robi" shirts to zumba on Friday!

At the bake sale we had a poster for people to sign and leave Robi a "Get Well" wish.

His daughter Joslyn signed it. She wrote: "I remember when we went and did lots of things. I miss them to but your better than all those things. Feel Better! -Joslyn"

Bike Ride Details

At this weekend's "Ride for Robi" Fundraiser we are hosting a 5K run (or walk) along with a 35 mile bike ride.
*There is no set entry fee, all donations are accepted.
*Bike Ride begins at 7:00 am and Run begins at 7:20 am.
*It is a family event so children are welcome to come ride bikes or push a stroller.
*There will be chair massages with 100% of donations being given to the Grimshaw Family.
*Thanks to Stu (Owner of Corporate Graffiti) we will have 200 shirts that he so kindly is donating and we will be selling at the Ride. The shirts are $20 and ALL proceeds go to Amber and Robi so come and buy a shirt.. before or after your bike ride... or run... or walk...

Along with that, there will be an awesome raffle including 2 sets of braces, dental exam and bleaching, Nascar Tickets, and lots more!! Raffle tickets are available online as well or you can email me at stone.lindsay1@gmail.com to purchase them.

One more thing, we are working with Project Sole to collect shoes for needy families overseas. We will get $2 for every pair of shoes we collect so please bring them to any fundraiser we host or email me to arrange a pick up time. They can be any size or shape (though sneakers are preferred) so dig out those old shoes and donate them to a good cause.

Hope to see you this weekend.

update

Rob and Amber flew to Phoenix on Sunday. They were able to make contact with someone through the blog and he has really been a huge help. He gave them the name of a doctor in Phoenix and they had their first appointment with him yesterday. (They've been waiting to get in to MD Anderson but it keeps getting postponed because they can't go until his prior hospitals to send over his tissue samples and etc) This doctor takes a comprehensive approach and he is open to researching and incorporating their ideas to make them all mesh together. He believes that Robi's terrible pain is caused by an infection in his arm and he got him started on an antibiotic today. This doctor is against amputating his arm. Amputation will cause alot of inflammation and cancer cells thrive in that. So rather than doing that, he wants to get control of the pain and then attack the system gently without causing more inflammation. Its been a productive few days but very busy and pretty tough on Rob. The doctor appointment is finally set for MD Anderson. It is July 13 at 8 am. This week they will get a little out-patient treatment for him and then make a final decision on doctors next week after their trip to Houston. Whatever she decides, it will be soon because there isn't time to waste. His tumors are spreading quickly and the pain is too much.

The doctor this week is all alternative so insurance covers nothing. It is $4000 per week. He will need to be there at least 4 weeks, and thats just to start. With all of our fundraising, we have been able to alleviate the financial stress on them. They have enough to worry about right now and we are doing awesome in our fundraising. We, you and me, are helping in ways we didn't even expect! Everyone has been so generous both financially and emotionally. The support we have given him helps him keep going on days when it hurts so bad, its unbearable. He needs us. They both do.

On Sunday it was their baby's 2nd birthday. He was in so much pain that, when I left their house, he couldn't even talk. But he wasn't able to rest. He had to get on a flight to Phoenix to make it to his Dr. appointment. Not only was he in severe pain, but he had to leave AGAIN, and even on her birthday. It was very hard for him. He is so close to his children and didn't want to leave her again. He's been gone so much of her little life because of his illness. We can't wait for the day when he is healthy.. and home making giant oreo balls and having movie night with his family.

But we are getting closer to answers and help!! We have hope and with all of our support he will have the strength to continue. Thank you so much for everything so far. You are awesome. Keep it up!

MORE RAFFLES!

We have been overwhelmed with donations from local businesses who want to help and support Robi. There are more items to be raffled off. If you would like to purchase raffle tickets, please donate via the paypal link to the right of this post, then comment under this post and let me know your name and email to contact you if you win. ALSO, Please tell me which raffle you would like to enter (there are 3 different raffles) If you'd rather purchase tickets in person, we will have them for sale at this weeks Ride For Robi Event on Saturday at Vistas Park.
Tickets are $10 each.

The Raffles are -

RAFFLE 1
1 Set of Phase 1 Braces (phase 1 generally means ages 7-10) includes retainer and x-rays. All those who buy into this raffle receive a free bracket upgrade!! for participating. (valued at $300) Centennial Hills Orthodontics This service without insurance goes for $2700-$3400, depending on the nature of the problem.
2 Purple Penguin Snow Cone Gift Certificates

RAFFLE 2
1 full orthodontic case, including braces. Valued at $6,000! Dr. Lance Whetten
2 Purple Penguin Snow Cone Gift Certificates

RAFFLE 3
Dental Cleaning, Exam, and Xrays, Dr. Kline C. Black
3 Purple Penguin Snow Cone GIft Certificates
1 Haircut by Jana Jarvis, Whoop-de-doos Salon

Walk in His Shoes

I'm super excited to announce another great opportunity to support Rob. Especially because it is an awesome way to help others in need. We are going to be collecting shoes. The organization is called Project Sole. They collect shoes, pay us a few dollars for each one, then send them to people in need. Most of us can think of a few pairs deep in our closet that don't get used or that have been outgrown right? Dust those babies off and bring them to the run on Saturday. They are looking for "sneaker" type shoes because they work best for the people over seas in need. We will be collecting shoes at all our upcoming events so keep 'em coming. If you would like to help collect shoes in your neighborhood let us know. We would be more than happy to pick them up and help you in your efforts. Thank you for all you do!

Tonight we were talking with Rob and noticing that his hair is starting to grow back. He made the comment that with no hair on his body he has no reason to look in the mirror. Each morning he wipes his eyes clear of sleep and is ready to go for the day. It's hard to see him so uncomfortable with pain but I love how still cracks jokes and makes the best of it.

Today is Savannah's birthday. She is Robi's 2nd daughter and turns 2 years old today. It was shortly after her birth when Robi first starting feeling pain in his left arm. There have been very few times when Robi has been able to hold his baby without feeling discomfort and pain. A few weeks ago, upon returning home from a Chemotherapy treatment, Robi was worn out and spending alot of time in bed. When he felt well enough he dressed himself and went downstairs. Savannah was so happy. She ran to him at bottom of the stairs and threw her arms around his legs in a hug saying "Yay, Daddy is awake!" Happy Birthday beautiful baby girl!

Bake Sale Fundraiser

Channel 8 Local News came to the Bake Sale today and interviewed Robi and Amber. You can see it here.

Congratulations to the raffle winners!
Lynn, Rachel, Shannon, Tom, Brett, and Amanda!
Enjoy your awesome prizes!


A HUGE thank you to all of the Bake Sale Fundraiser Supporters! We raised over $7,000! Thank you so much to those who put it together and made it happen. See you at the Bike Ride/5K on the 9th!

Rob's going to be on the news tonight at 6:30. Channel 8 came to the bake sale fundraiser today and interviewed both Robi and Amber. Please tune in!

We have 2 tickets to the UFC fight tomorrow night, Saturday July 2. They were donated to Rob's Bake Sale Fundraiser. We have listed them on eBay. Click here to purchase them.

It's Thursday evening. Rob and Amber are still in Las Vegas. MD Anderson in Houston is trying to schedule an appointment to see Robi but the doctor that he needs to see is out of town until next week. We hoped they would get in this week but it'll still be a few more days. It's kind of a waiting game. Time is limited, but time is what it takes to get in. It's a little scary to sit and wait, with no treatment.
But to make time pass more quickly, Robi's sister and her family have been here (in town from Arizona) all week to help. They have been preparing meals, reading books and researching online. It has been alot of help to both Robi and Amber.
On Monday morning Amber was able to speak with a pain management nurse at Huntsman Cancer Center. They came up with a safe way to increase his pain medication to prevent any more pain attacks like he had on Sunday. Unfortunately, the dosage couldn't be increased until Monday night so he suffered for a few days. ... Suffered is an understatement. He couldn't even make it to his doctor appointment on Monday morning because of the severity of the pain. Not sure how to describe a pain that is so much more than anything I have ever felt, or probably ever will feel, in my life. He is fighting, whether by his choice or not, he is fighting.
Tuesday was a much better day. Wednesday and today have been about the same. The Review Journal contacted us today and are going to print Robi's story in the July 12 issue. He was also asked to be on a radio news station for an interview on Monday, July 4th to share his story and his cause. If it works around his doctor appointments, he'll do it. I'll be sure to give you all of the information so you can listen.
The bake sale is Saturday. We are hoping to raise enough money that we will have enough for them to get started on treatment as soon as they find the right doctor. MD Anderson is looking very promising. The Hope For Cancer Clinic in Mexico looks promising as well. No decisions have been made but I will definitely make a post when a treatment has been agreed upon and started.

Raffle!

We have an incredible raffle set up for the bake sale this Saturday. We are selling raffle tickets for $10 each. You can buy them online now. Here's how:
*Review the 6 different raffles, decide which raffles you would like to be entered into. If your ticket is drawn, you win everything in that particular raffle.
*Click on the Donation link and donate $10 for each ticket that you would like to buy.
*Leave a comment on this post telling me: your full name, how many tickets you purchased, and which raffles you'd like me to put your tickets in. (please don't forget to tell me this info)
*Thank you and GOOD LUCK!

Raffle #1
Full set of braces from Dr. Zachary Truman
Glitter Toes by Carli Lewis
2 Haircuts by Carli Lewis
1 Night Stay at the Mandalay Bay
Nothing Bundt Cake Gift Certificate


Raffle #2
Jeanna Hayes Photography Session
Haircut at Belle Cheveux by Veronica
$50.00 Gift Card to Vintage Rose Wraps
Eyelash Extensions by Savannah at Lash Candy
Gift Certificate to Hawaiian Shaved Ice
Private Baseball Lessons (kids) from Shawn West

Raffle #3
$200 Gift Certificate to Bell Photography
Haircut by Jenna Roades at Whoop dee doos
Full Body Massage by Kelcee
$50.00 Gift Certificate to KiKi Creates
Gift Certificate to Hawaiian Shaved Ice
$50.00 Gift Certificate to Orange Blossom
Custom Notecards from ShePaperie

Raffle#4
Sarah Gregory Photography Session
FX You Salon-Haircut, Facial by Kristy & Jellish Pedicure
Nothing Bundt Cake Gift Certificate
Gift Certificate to Hawaiian Shaved Ice

Raffle #5
Standard Garage Door & Install by Matthew at Western Door and Gate
2 Haircuts by Carli Lewis
Glitter Toes by Carli Lewis
Full Body Massage by Kelcee
$100.00 Gift Certificate for Window Washing by Don's Window Washing


Raffle #6
Dental Cleaning, Exam, XRays & Whitening by Dr. Amy Gearin
$100 Gift Card to Target
$25 Gift Certificate to Just Be
Sparkle Power Loot
Gift Certificate to Nothing Bundt Cake
$200 Gift Certificate to Stitched at The Cosmopolitan 
Gift Certificate to Hawaiian Shaved Ice

Channel 8 News Story

Please click HERE to visit the Las Vegas Channel 8 News Story that was posted about Rob.

This picture was taken a few weeks ago. Its Robi's arm. The tumors are breaking though the skin and those are sores that you see. Looking at this gives us an idea of what pain he must be feeling. I can't imagine what is feels like on the inside if this is what the outside looks like. Over the past few weeks its managed to get even worse. He really needs our help to get through this. He can't do it alone. Thank you so much for all you have done so far. Your comments and messages have been priceless.

This Saturday there is going to be an awesome bake sale fundraiser for Robi. There will be a raffle including the following items (click on the link to see the website of those who donated)-
$200 gift certificate BELL Photography.
1 Photosession Sarah Greggory
3 sets of greeting cards by ShePaperie
$50 gift certificate to Kiki Creates
$25 gift certificate to Just Be
$25 gift certificate to Vintage Rose Wraps
Nothing Bundt Cake Gift Certificate
1 Photosession with Jeanna Hayes Studios. Includes disc with full resolution images.
Full set of braces Dr. Zachary Truman
Full set of eyelash extensions by Savannah Seastrand
2 Full body massages by Kelcee Williams
ABC Poster, Flag Garland, and Tooth Fairy Pillow from Sparkle Power
$100 gift certificate to Don's Window Washing
Facial from FX You Salon and Spa
Haircut from FX You Salon and Spa
Jellish Pedicure from FX You Salon and Spa
Haircut from Veronica at Belle Cheveux Salon
Haircut from Jenna at Whoop-de-doos Salon
FREE Exam, XRay, Cleaning and Whitening Dental Service from Dr. Amy Gearin
$50 Gift Certificate for Orange Blossom shop

To buy raffle tickets in advance, Please text 702-327-2697.
See you there!

Please keep Robi in your prayers today. He is suffering and in ALOT of pain yesterday and today. I think the busy week really exhausted him.

Bake Sale Fundraiser

If you have any questions or suggestions regarding the bake sale please contact Jodie Melton at 
j0dielynn@yahoo.com

Sometimes the size and strength of a body mean less than the kind of heart it carries inside. All the muscle in the world mean nothing compared to a brave heart.

To Mexico and back

I don't know if any of you have noticed but we added a ticker on this blog to see how many people are checking it out. There's been over 1300 in a 24 hour period! I'm a little intimated to post with all of you readers. But we all want to support our friends so I'll do my best to keep you updated on how they're doing.
Its been an eventful week for Robi and Amber. They drove to Los Angeles on Tuesday, San Diego on Wednesday, Mexico on Thursday, back to Los Angeles and home today. It makes me tired just to type that! They were able to meet with 4 different doctors and every day they are one step closer to finding the help they need. This blog and the Facebook links have just started this week (Tuesday I believe) so Rob and Amber have been on the road while receiving all of your love and support through emails, comments, donations, and etc. It's amazing to see how quickly everyone has responded and jumped on board to help Rob win this battle. It's been so inspiring to me as I watch everyone connect through love and service for this sweet family.
So what did they find out this week? Well, I will share what I know. The Mexican Clinics were really great. They felt comfortable there and the doctors were very compassionate. The patients at the clinics were very happy with their decision to be there. It's hopeful and a great option. Doctors aren't positive how to cure his cancer because it seems that no one has seen anything like this, BUT it doesn't mean they can't. Just because it's rare doesn't mean it's incurable.
At home, Amber juices all kinds of organic vegetables for him to eat. She's got so many carrots, brussels sprouts, asparagus, and stuff that I don't even know what it is in her juicer that he doesn't have time to get hungry. Her fridge looks like the produce section of the grocery store. You know he's having some interesting smoothies when wheat grass shots are a yummy treat. Last weekend they came out to the ranch for a little relaxation. I asked Rob if he wanted a sandwich from our cooler for dinner. He said "No thanks, Amber's going to go pick me some grass to eat in a minute". At least he's making jokes about it, right..?? :). Amber is taking such good care of him and it's really sweet to watch her. They love each other and they are great parents.
It's been a long week with ups and downs so they are happy to be home (well hopefully they are home by now. When I last talked to them they were stuck in LA traffic, but on their way). They've missed their girls and were anxious to see them. This week has given them options, finally! They have 1 more clinic to visit before making their decision on what route to take. They are excited to get started on a treatment but also relying on their faith to direct on the best path. MD Anderson is a fantastic clinic that they need to visit before making that final decision. So that was their week. Traveling around the world in search of some answers. At times, Robi's pain was so bad that he couldn't get out of the hotel bed and they had to miss appointments. But other times his pain let up and he kept on moving forward. Let's keep cheering him on and together we will win!! Follow the advice of Camille Roskelley and "Give your families an extra hug today, I know I will mine."

Avon Fundraiser

Becky Prusse and her family is hosting an Avon Fundraiser to help raise money for the Grimshaw Family - all proceeds will go to them! You can help by passing out information on the Grimshaw Family Avon Fundraiser to all of your personal friends and family (the more people who know, the more money can be raised!)

The fundraiser is easy...
Order Avon products. Stock up now on everything your family uses, gifts, etc. Its easy to order.
1. Call or email Becky your order (702)413-9168 or AvonByBecky@cox.net
2. Go to www.youravon.com/rjaneprusse and place your order directly with Avon. Use FREE shipping code FSC14

After you've ordered, please email her your information so she can update you on how much money we've raised for the Grimshaw family! Orders are due by July 7, 2011. Thanks for helping this wonderful family.

Becky Prusse - 702.413.9168 or cell 925.354.1494
AvonByBecky @cox.net, www.youravon.com/rjaneprusse

Zumba Fundraiser today

Thank you!!
Everyone was so generous at Zumba today.
We raised $1460.00!
Thank you!!

Bake Sale

There will be a great bake sale on July 2!! Donations have come in from around the city along with many delicious bakers and their talents. I will post the invite tomorrow but just wanted to give you a head's up... thanks!

Ride or Run for Robi Fundraiser

Click on the image
to view and zoom in!

Call Cason with
any questions
702-234-5948!

No entry fee, all donations are accepted. No pre-registration necessary.
See you there.

Video

Rob and Amber are in California tonight. They drove down yesterday morning to meet with a doctor at UCLA and continued the drive to the Mexico border tonight. They will go in to Mexico tomorrow and meet with 2 clinics. Friday they will meet with a doctor at Cedar Sinai and then come home, back to their girls and Papa. Next week they will meet with the doctors at MD Anderson. They are traveling to meet with doctors and find one who will care enough to help.
Yesterday was a very discouraging day for them. The doctor was very short with Rob and Amber and gave no options. Rob is in excruciating pain, but the doctor didn't offer any suggestions. This is just another reason why he needs to meet with experimental programs and natural therapies asap.
I spoke with Amber last night after a very difficult day. She was very positive, as always. She knows there will be many hard days. She was thankful for her blessings. The response on facebook and this blog really made all the difference in the world to them. After being very discouraged, they saw all the comments and the donations being made. You were their saving grace yesterday. You lifted their spirits and gave them strength.
Lets keep spreading the word and getting more donations so when they find the right doctor they will be able to start immediately.
Thank you!!

Fundraisers...

There are a few fundraisers currently being planned. Cason is working on a bike ride and 5K run. It will take place on July 9, 2011 at 7 am. It will be sponsored by Discount Dumpsters and donors include Merrill Lynch and USSSA. Lindsay and family are planning a day where everyone can visit their ranch and swim, fish, swing off tower into pond, etc. More details to come but just a heads up... Don't forget this Friday's Zumba fundraiser that is posted below.

Rob's Story... in a nutshell

Rob Grimshaw has a unique story to tell. For now, I will share it from my perspective but I hope in the future he will allow me to share his story at a more personal level. Rob married his highschool sweetheart, Amber Turner, and together they have two beautiful girls. Joslyn, 8 and Savannah, 2. Shortly after Savannah's birth, Rob began feeling pain in his left hand. He was diagnosed with carpal tunnel. Following 2 surgeries for carpel tunnel the pain continued and was getting worse daily. After researching many options and doctors, Rob traveled to St. Louis to see nerve specialist (we thought carpal tunnel surgery had severed his nerve).

The nerve specialist found a tumor in his arm just under his elbow. It was the size of an egg. Doctors removed the tumor and Rob was told it was benign. 1 week later St Louis called. It was high grade MPNST (Malignant Peripheral Nerve Sheath Tumor). He was told to get on a plane the following day so they could take a large part of the surrounding area in case it had spread. He did. Leaving behind his family and new baby, he left feeling worried and had many questions. They did a CAT scan to see if it had spread to his lungs and the scan showed only two nodules. The doctors advised him that it was nothing to worry about.

Rob then continued to follow the advice of his doctors and underwent brachyradiation therapy in St. Louis and came home to Las Vegas. In Vegas, he went through 1 month of external beam radiation. (We have since learned that this treatment caused the cancer to grow and spread more rapidly than ever)

By the end of the year, the family celebrated being cancer free. But soon after the new year, his arm was back into pain. Rob was told to have a CAT scan once a year but because of his pain, he insisted they scan him again. He went back to St. Louis in early March 2011 for an MRI cause the Las Vegas doctor kept telling him it was scar tissue from radiation.

The MRI found sarcoma cancer was back in his arm and was breaking through his muscle. He was advised to amputate his left arm. Rob and Amber wanted a second opinion. By this point, every doctor was advising different procedures and each had a different prognosis. Together they went to Utah and on March 28, 2011 (worst day of their lives) Rob had a cat scan on his chest that showed tumors in both lungs. Now considered stage 4. (incidentally Rob found his mother passed on this same day 2 years earlier) so this really is a bad day for their family. Rob started chemotherapy in Salt Lake City, a 6 hour drive. They would come home for two weeks, then drive back to Utah for 1 week of chemo. He did 3 rounds of chemo. During the 3rd round pain was so intense that he had to have a nerve block to numb his arm.

Doctors did another biopsy sticking a long needle in his arm 20 times to see if maybe he had an infection. No infection was found, but they did change the pathology report to a diagnosis of epitheliod sarcoma. Doctors said chemo has not been found to help with this type if cancer.

Through all of this, Rob has continued to coach his daughters soccer team, hold his calling in church, and inspired his 14 year old niece to get baptized into the Church of Jesus Christ of Latter-Day Saints. He was able to baptize and confirm her though the tumors in his arms were ripping through his muscles and bone. He cried all during church from the pain of his arm. Somedays he can't get out of bed because the pain. Somedays it's dificult to breath deeply. Somedays are filled with tears and worry but other days are filled with hope and faith. Amber stays home with him... cooking and keeping up with his meds. She searches the internet and calls people trying to connect in order to find a cure. There are experimental and alternative treatments available but insurance will not cover them. Because the US has only seen 8 cases of this type in the past 15 years, there isn't alot of "approved" therapy available. The need for research isn't high because very few people suffer from this. Together we can support Rob and his family. Financially, emotionally, and physically they will feel our help and love. Thank you.