It's Thursday evening. Rob and Amber are still in Las Vegas. MD Anderson in Houston is trying to schedule an appointment to see Robi but the doctor that he needs to see is out of town until next week. We hoped they would get in this week but it'll still be a few more days. It's kind of a waiting game. Time is limited, but time is what it takes to get in. It's a little scary to sit and wait, with no treatment.
But to make time pass more quickly, Robi's sister and her family have been here (in town from Arizona) all week to help. They have been preparing meals, reading books and researching online. It has been alot of help to both Robi and Amber.
On Monday morning Amber was able to speak with a pain management nurse at Huntsman Cancer Center. They came up with a safe way to increase his pain medication to prevent any more pain attacks like he had on Sunday. Unfortunately, the dosage couldn't be increased until Monday night so he suffered for a few days. ... Suffered is an understatement. He couldn't even make it to his doctor appointment on Monday morning because of the severity of the pain. Not sure how to describe a pain that is so much more than anything I have ever felt, or probably ever will feel, in my life. He is fighting, whether by his choice or not, he is fighting.
Tuesday was a much better day. Wednesday and today have been about the same. The Review Journal contacted us today and are going to print Robi's story in the July 12 issue. He was also asked to be on a radio news station for an interview on Monday, July 4th to share his story and his cause. If it works around his doctor appointments, he'll do it. I'll be sure to give you all of the information so you can listen.
The bake sale is Saturday. We are hoping to raise enough money that we will have enough for them to get started on treatment as soon as they find the right doctor. MD Anderson is looking very promising. The Hope For Cancer Clinic in Mexico looks promising as well. No decisions have been made but I will definitely make a post when a treatment has been agreed upon and started.